Well, I’m finally back after a brief but needed respite.
The topic today relates to Chronic Fatigue Syndrome (CFS) which many health care professionals have wrongly thought of it as a psychological disorder. A recent coroners report in the UK showed that a 32 year-old women had actually died from complications from CFS. A neuropathologist named Dominic O’Donovan said that the inflammation in her spinal cord was a clean sign that the CFS that she had been suffering from over the past 6 years was at fault.
Getting told that “it’s all in your head” when a disorder is really biochemical in nature must be a frustrating experience. When my daughter was first diagnosed with epilepsy, the doctor told us to just get use to it as we weren’t able to do much else ourselves as the doctor was the “epileptologist” and we were just parents. It would be nice if there were more doctors willing to listen and learn.